Co-Designing, Pre-Testing and Refining an Intervention Programme to Support Parent-Adolescent Communication about Shared Self-Management Responsibilities in Type I Diabetes

This knowledge exchange activity aims to work together with young people with Type 1 Diabetes (TID), parents of young people with TID, professionals (from a range of disciplines e.g. diabetes nurse specialists, psychologists, consultant paediatric endocrinologists) and community advocates (e.g. Diabetes Ireland) to codesign, pre-test and refine the content, delivery procedures, methods and manuals of a new intervention programme to support parent adolescent communication about shared self-management (SM) responsibilities in TID. Our current research has identified the difficulties involved in sharing SM responsibilities between parents and adolescents which can often result in ineffective communication and negotiation contributing to family conflict. There are currently no intervention programmes to facilitate families to establish shared goals and positive parent-adolescent communication about diabetes shared care. It is expected that such an intervention would empower parents and young people to overcome challenges associated with conflicting SM responsibilities and in turn positively impact on diabetes outcomes (e.g. increased adherence and control; reduced distress and conflict; and enhanced psychosocial wellbeing). This KED activity aims to advance knowledge generated from our active grant by specifying the components of a new intervention programme, developing procedures and materials for delivery of the programme and pre-testing and refining the programme to ensure it is acceptable to its intended users and feasible to implement in practice. Knowledge gained from this KEDS will form a critical component for future feasibility testing and rigorous evaluation of the co-designed intervention programme; thereby contributing to the ongoing translation of generated knowledge into practice.

Award Date: 27 September 2018
Award Value: €32,980.14
Principal Investigator: Professor Veronica Lambert
Host Institution: Dublin City University
Scheme: Knowledge Exchange and Dissemination Scheme