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Alpha One Foundation Athlone Institute of Technology Beaumont Hospital Cystinosis Foundation Ireland DCU Department of Agriculture, Food and Marine Dublin City University Dublin Dental University Hospital Dublin Institute of Technology Economic and Social Research Institute Fighting Blindness Fondazione Telethon Fraunhofer ITMP Health Information and Quality Authority Health Research Charities Ireland HSE - Letterkenny General Hospital HSE - Midland Regional Hospital at Tullamore HSE - St. Luke's Hospital (Rathgar) Institute of Technology Sligo IPPOSI Irish Blood Transfusion Service, National Blood Centre Irish Cancer Society Irish Clinical Oncology Research Group Ltd Irish Platform for Patients Organisations Science and Industry Irish Platform for Patients' Organisations, Science and Industry Irish Platform for Patients' Organisations, Science and Industry Ltd Irish Platform for Patients’ Organisations, Science and Industry Irish Thoracic Society Katholieke Universiteit Leuven Limerick Institute of Technology Mary Immaculate College Limerick Maynooth University Medical Research Charities Group Ltd Molecular Medicine Ireland National Rehabilitation Hospital National Suicide Research Foundation National University of Ireland Galway National University of Ireland, Galway National University of Ireland, Maynooth Our Lady's Hospice RCSI Royal College of Physicians of Ireland Royal College of Surgeons in Ireland Royal Victoria Eye and Ear Hospital Research Foundation Ltd St John of God's Research Foundation Limited St. James's Hospital TCD Teagasc Technological University Dublin The Alzheimer Society of Ireland The Children's Hospital of Philadelphia The Children's Medical and Research Foundation Trinity College Dublin UCD University College Cork University College Dublin University Hospitals Leuven & KU Leuven University of Auckland University of California San Francisco University of Cambridge University of Galway University of Limerick University of Oxford
Scaling up the Family Carer Decision Support Intervention: A transnational effectiveness-implementation evaluation
The Family Carer Decision Support (FCDS) intervention has been designed to inform family carers about end of life care options available to a person living with advanced dementia. The effect of the FCDS was demonstrated through a study that employed a cluster randomized control trial involving 24 care homes located in the United...
Rare neurodegenerative disorders (RND) like Huntington?s Disease (HD) require multidisciplinary care teams which are in short supply. Given the devastating consequences of RNDs for the individual patient and their families there is an urgent need to develop innovative ways to ensure access to best practices and established care...
Huntington?s Disease (HD) is a progressive, life-limiting neurodegenerative disease. It has devastating consequences for the individual and their families. No current treatment to modify the course of the disease exists. Improved evidence-based symptom assessment is crucial to optimising disease management. This project aims to...
Control of neuronal proteostasis by stress-induced transfer RNA fragments (?tiRNA?) as a common stress pathway across neurodegenerative disorders.
This application is for supplemental funding through PA-18-591 for the recently funded grant (1R01AG058476-01), entitled ?Dysfunction of the autophagy-lysosomal pathway as a common mechanism of neurodegeneration,? and the JPND project to support collaborative studies between Dr. Finkbeiner?s lab (Gladstone) and the JPND RNA NEURO...
Health care decisions should be based on the combination of the full amount of information that is available rather than relying on the convenient selection of one or more individual pieces of information, or studies. Evidence synthesis methods seek to establish the overall balance of information on a given topic, and are based on...
Biological Resource Analysis to Identify New Mechanisms and phenotypes in Neurodegenerative Diseases "BRAINMEND"
Joint Programme on Neurodegenerative Disease (JPND)
No summary available.