Development of a national severe asthma registry and comprehensive care program

There has been a drive to deliver new asthma treatments through new biological agents. However, age old issues including poor adherence and poor inhaler use still apply and mean that it is difficult to tell if a patient has difficult to manage asthma or therapy refractory asthma. The proposal is to build a registry for patients with severe asthma. The registry will be a live patient management tool that uses novel technologies developed by the applicant's team that optimises a patients inhaler adherence and inhaler technique and also aligns this information with their clinical outcomes so that patient care can be optimised.
As part of the HRB funded INCA SUN randomised control trial we have identified that adherence to therapy by patients with severe asthma is poor but it can be optimised using a novel technological and educational methods developed by the team. This technology can assist physicians and specialist nurses to identify whether a patient has been adherent in therapy and has used their therapy effectively before advancing to more expensive and invasive monoclonal antibody therapy. In this project we will develop a web portal for a patient registry for patients with severe asthma. Secondly, we will hold workshops that are designed to provide Clinicians with the expertise in addressing and quantifying adherence and intervening on poor inhaler technique. Thirdly, work with HSE to implement this approach to care in a Severe Asthma network.

Award Date
23 October 2015
Award Value
Principal Investigator
Professor Richard Costello
Host Institution
Royal College of Surgeons in Ireland
Knowledge Exchange and Dissemination Scheme