National intellectual Disability Supplement to The Irish Longitudinal Study of Ageing-Wave 4

IDS-TILDA is a longitudinal study researching ageing in Ireland among people with an intellectual disability (ID) aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with intellectual disability with the general ageing population through its linkage to The Irish Longitudinal Study on Ageing (TILDA). An intellectual disability supplement was needed because (1) the geodirectory sampling frame for TILDA excluded people living in out of home placements including residential centers and group homes for people with ID (2) focusing only on people aged 50 years and older as in TILDA would mean that premature ageing reported for some individuals with ID would not be studied (3) lack of adaptation of consent and interview practices would unnecessarily exclude many people with ID and (4) issues unique to people with ID would not be sufficiently explored. Findings to date have borne out the importance of these issues in understanding the ageing of people with ID. The underpinning values of IDS-TILDA include inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to make a contribution to the lives of people with intellectual disability.

Award Date

07 December 2018

Award Value

€1,499,999.00

Principal Investigator

Professor Mary McCarron

Host Institution

Trinity College Dublin

Scheme

National intellectual Disability Supplement to TILDA