A Patient Education Programme in Health Research & Innovation

Well informed patients and carers have a key role to play in the design and implementation of person-centered healthcare and research. Whilst patients are eager to have better and safer health products and innovations, they are often unaware of the complex nature of how new health innovations are researched, developed and made available. They may also be unaware of their own potential to play supportive roles in the process to achieve scientific and therapeutic breakthroughs. Through a combination of online & face-to-face education, and in partnership with a number of supporters, the KEDS-supported activity will deliver a national patient education programme, designed specifically for Irish patients, carers and advocates. The programme will provide objective, comprehensive, scientifically reliable information to patients, initially around medicines research & development and will seek to add further topics of interest to patients. The programme is designed to enable and empower patients and patient advocates to work effectively with Irish health research partners, agencies & authorities. These ?Expert Patients'will work to support new research and policy advances in areas where the importance of a patient voice is called for, and where there is currently a shortage of patient contributors with the right skills set. The programme is a response to the large appetite and interest from Irish patient communities in becoming more involved in the decisions that are made on their behalf, but often without their input. It also positions Ireland at the forefront of innovative approaches to educate patients on health research and innovation.

Award Date
27 September 2018
Award Value
Principal Investigator
Professor Derick Mitchell
Host Institution
Irish Platform for Patients' Organisations, Science and Industry Ltd
Knowledge Exchange and Dissemination Scheme