Polycystic ovary syndrome (PCOS) is a chronic health condition that affects up to 15% of all women. It is characterised by increased blood levels of hormones called androgens (such as testosterone), alongside irregular periods and multiple follicles on the ovaries on ultrasound. PCOS has traditionally been perceived as a purely reproductive disorder, resulting in absence of ovulation and subfertility. However it is now increasingly clear that PCOS is a chronic metabolic disorder with significant health consequences for affected women across the lifespan. These adverse health outcomes include a significantly increased risk of type 2 diabetes, fat accumulation in the liver and cardiovascular disease. Furthermore, women with PCOS have reduced quality of life and an increased risk of mental health disorders, early retirement from their working careers and a higher risk of sleep disorders such as obstructive sleep apnoea than their non-PCOS counterparts.
Despite the high prevalence of PCOS in population studies, up to 50% of affected women remain undiagnosed. Women with PCOS report attending multiple healthcare professionals before a diagnosis is made, and are consistently underwhelmed with their diagnostic journeys. Infrequent or absent periods in women may be an indicator not only of possible PCOS but also other underlying health disorders. The purpose of the 11OXO-KTA funding is to increase public and clinician awareness of PCOS and its long term health implications in women. We will launch a targeted social media campaign, in tandem with our partner patient support group PCOS Vitality, to educate women and healthcare professionals about irregular periods and PCOS. The camaign will engage with schools and minority groups including the Traveller community. We will engage with online ‘influencers’ to disseminate information. This will be complemented by a podcast series, a professionally directed film featuring patients and clinicians, and interactive teaching sessions using innovative technology and animation.
