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PATHFINdEr: Parental information on Therapeutic Hypothermia FollowIng Neonatal Encephalopathy

Neonatal brain injury can have devastating outcomes for the baby and their family and may result in longterm disability. The only treatment available is whole body cooling started within a few hours of birth. Babies also require intensive care to support their lungs, heart and kidneys. We will develop an educational toolkit including videos, online resources suitable for easy sharing through social media as well as printed leaflets for parents, families and health care providers to explain these complex processes. Key stakeholders including parents, families, parent support organisations, neonatologists, neonatal nurses, allied health professionals, primary care physicians, obstetricians, international experts and public health nurses will provide their expertise in developing this infomation for families. We further aim to engage parents, families and the community in tools to improve their baby’s outcome and development, focussing on family-centred care both in the neonatal intensive care unit and after discharge.