The IDS-TILDA study is designed to better understand experiences and challenges for adults with an intellectual disability (ID) as they age. 753 persons aged 40+ started in the study. There have been two waves of data collection, with waves three years apart and 94% of people who answered at Wave one participated again at Wave two. We think this is because what we are doing is important to people with ID, their families and their key workers and it helped that we involved people with ID in every step of our study. After Wave one we developed an accessible report and a DVD which explained the findings in an accessible way. Accessible because over 80% of people taking part in our study reported difficulty in reading, writing and managing numbers. Now that Wave two is over we want to do similar things.
What we will do: Recruit actors with ID to develop another DVD of scenes that illustrate key IDS-TILDA Wave two findings
Why it is important: We want to continue to demonstrate to participants why their participation is so important and to help participants to understand the findings from our/their study. We also think that offering information in this way will encourage participants to continue to participate in future waves of IDS-TILDA. How we will do it: We will develop and distribute a DVD to participants, families and key staff. We will use infographics on key findings as the basis for roadshow presentations at the services where participants attend.
