Workshop: Experts by Experience in Public and Patient Involvement: What does this mean?
26/03/2020
09.30-16.00, 6.5 hours DCU All Hallows Campus
Public and Patient Involvement (PPI) is research carried out with or by patients or public members rather than to, for or about them. Experts by Experience (EBE) are service users or carers who are experts through lived experience of illness or services. EBE are one type of patient or public member that can contribute to PPI. While the need for EBE in developing evidence and research is well-known, barriers exist such as lack of awareness and understanding of PPI and recruitment of EBE. This workshop bring together different stakeholders to explore what is meant by experience, increase awareness of EBE in PPI and identify challenges and solutions for EBE recruitment.
Objectives
Examine why EBE is an important part of PPI and how it brings something different to PPI
Explore perceptions and experience of the EBE process from a variety of viewpoints.
Identify challenges in accessing and recruiting EBE and recommendations to overcome these challenges.
A short report, easy read infographic and open letter on discussions and recommendations will be prepared. Outputs will further inform PPI in research by unpacking EBE barriers including awareness, understanding, access and recruitment. Learning from the event will inform future proposals to continue advancing PPI in Ireland. Following the Patients Included Charter (1) the topic of this event was chosen by patient organisations on the organising committee.
Funding amount
€4970
Organising Team
See attachment
