Based on the findings of the research conducted during our HRB Research Leader’s Award, the aim of the proposed KEDS project is to effectively disseminate the finding of our research to chronic pain patients and the general public. Sharing research findings with the general public is very important but can be difficult to get right; we want to explore what people will actually find engaging and useful.
We will examine how research participants and patients want to learn about research during a participative health research workshop with representatives from health service users and patient groups. This workshop will explore what level of information people would like to get and in what format. For example, do people prefer copies of published papers, lay summaries, posters, videos with case stories or animations? How much detail do they want? The workshop will support participants to guide the format, design and content of several outputs using a variety of media.
An online resource to communicate the findings of our research will then be created based on the perspectives shared in the workshop. This will likely involve videos and other forms of media on each of the activities conducted during the RLA award. This project is specifically aimed at the needs of health service users and could become an effective and straightforward template on how best to share knowledge with research participants for both the current RLA team and other health researchers.