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39 Publications
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Published: 27 December 2023
Independent programme of evaluation of the State’s investment in The Irish LongituDinal Study on Ageing (TILDA) - Main Report
This report utilises a mixed-methods approach comprising both quantitative and qualitative tools to assess the outputs, outcomes and impacts of the TILDA programme. The methods used to collect data involved desk research (including bibliometric analysis), individual and focus group qualitative interviews, an in-depth...
Published: 11 July 2023
Overview of people engaging with disability services in Ireland, 2022
Bulletin from the National Ability Supports System (NASS) on data provided by disability service providers for people engaging with services through the HSE disability budget in 2022.
Published: 01 March 2022
Predictors of access to healthcare professionals for people with intellectual disability in Ireland
The Irish National Intellectual Disability Database is updated annually and in 2017 contained records for nearly 22,000 persons aged 15 years and over. Information was extracted on the contacts each person had with one of eight health professionals in the years 2007, 2012 and 2017. Over these years, there was an increase in...
Published: 20 December 2021
Outputs, outcomes, and emerging impacts: Results from HRB-funded awards that completed in 2018–19
This report presents a snapshot of the outputs, outcomes, and some emerging impacts arising from 170 Health Research Board (HRB) awards (with a combined value of €49.5 million) that completed in 2018 and 2019. Further outputs, outcomes, and impacts can be expected to occur in the years following the completion of these...
Published: 01 July 2021
People with intellectual disability in Ireland are still dying young
People with intellectual disability die younger than their non-disabled peers. In recent years, greater attention has been paid to closing the gap. However, evidence that this is being achieved is limited by the dearth of longitudinal, national data.
Published: 02 June 2021
NASS annual report 2020 - disability service use and need
This report provides:
- A profile of the 36,649 people with a disability reviewed on NASS in 2020;
- Details of the HSE disability-funded services currently availed of, and those required now or within the next five years.
Supplementary reports on service users with an intellectual...
Published: 13 May 2021
Family carers of people with intellectual disabilities in Ireland: Changes over 10 years
Data were obtained on nearly 20,000 Irish children and adults living in various family care arrangements in 2007, 2012, and 2017. Over 10 years, the percentage increase in adult persons living with family carers was three times higher than the rise in the general population, with people aged 50 years and over having the...
Published: 29 September 2020
NASS bulletin 2019 – disability service use and need
This bulletin, along with the two supplementary bulletins, presents the inaugural findings of data from the National Ability Supports System (NASS). It provides a profile of the 22,434 people with a disability registered on the system in 2019 as well as details of the disability-funded services currently availed of...
Published: 17 December 2019
Outputs, outcomes and emerging impacts
Outputs, outcomes and emerging impacts: Results from HRB awards completed in 2016/2017
This report presents a snapshot of, and provides trend analysis over 10 years for, the outputs, outcomes and some emerging impacts from 187 HRB awards (combined value of €47.2 million) that completed in 2016 and...
Published: 01 June 2019
The prevalence of intellectual disability: A comparison of national census and register records
International prevalence rates for intellectual disability vary widely with estimates often based on samples. In Ireland people with an intellectual disability are identified in the national census. Moreover, a national register of people receiving or requiring intellectual disability services is maintained and updated...
Published: 15 October 2018
Quality of life outcomes and costs associated with moving from congregated settings to community living arrangements for people with intellectual disability. An evidence review
The purpose of this review is to systematically evaluate the evidence on quality of life outcomes and costs associated with a move from a congregated setting to a community living arrangement for people with intellectual disability. The right to live independently in a place of one’s own choosing is a core value of the...
Published: 29 June 2018
Annual report of the National Intellectual Disability Database Committee 2017
The 2017 report provides:
- a profile of people with an intellectual disability registered on the database in 2017,
- details of the specialised health and personal social services provided; and
- an outline of the future requirement for those services.
Infographic, tables...
Published: 09 February 2018
Irish persons with intellectual disability moving from family care to residential accommodation in a period of austerity
Ireland has a growing population of adult persons living with family carers, thereby increasing the demand for residential places. Simultaneously, government policy aimed to reprovision residents living in congregated settings but at a time when funding was curtailed due to the economic crisis. This study examines the...
Published: 20 June 2017
Annual report of the National Intellectual Disability Database Committee 2016
The 2016 report provides:
- a profile of people with an intellectual disability registered on the database in 2016,
- details of the specialised health and personal social services provided; and
- an outline of the future requirement for those services.
Infographics (.jpeg image...
Published: 07 April 2017
Outputs and outcomes of HRB awards completed in 2014 and 2015
This report presents an analysis of the outputs, outcomes and some emerging impacts across a range of evaluation metrics and indicators, arising from 198 HRB grants (combined value of €55 million) that completed in 2014 and 2015. The analysis presented is a snapshot at the point of end-of-grant (EOG). Further outputs,...
Published: 28 September 2016
Annual report of the National Intellectual Disability Database Committee 2015
The 2015 report provides:
- a profile of people with an intellectual disability registered on the database in 2015.
- details of the specialised health and personal social services provided; and
- an outline of the future need for those services.
Published: 23 May 2016
Proposals for an enabling data environment for health and related research in Ireland
Ireland has considerable data resources in a number of fields which could be harnessed to advance medical treatments, enhance health service delivery and inform policy and planning across government and civic society. These include:
- Routinely collected health services data (e.g. see Catalogue of National Health...
Published: 30 November 2015
Annual report of the National Intellectual Disability Database Committee 2014
This report is a summary of the main findings of the sixteenth Annual Report of the National Intellectual Disability Database Committee. It presents data for 2014 on the demographic profile of those who are registered on the National Intellectual Disability Database (NIDD), their current usage of day and residential...
Published: 28 January 2015
Outputs and outcomes of HRB awards completed in 2012 and 2013
This report presents an analysis of 134 HRB grants (combined spend of €44 million) that completed in 2012 and 2013. It provides an overview of the initial outputs and some outcomes arising from these grants across a range of metrics and indicators. An important proviso in considering this report is that the...
Published: 01 October 2014
Annual report of the National Intellectual Disability Database Committee 2013
This report is a summary of the main findings of the sixteenth Annual Report of the National Intellectual Disability Database Committee. It presents data for 2013 on the demographic profile of those who are registered on the National Intellectual Disability Database (NIDD), their current usage of day and residential...
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