This page brings together videos from throughout the HRB National Conference on personalised medicine, following the programme of the day. It includes a series of videos sharing views from the public: produced with communities around Ireland, we asked people from all backgrounds to share their thoughts on personalised medicine and the challenges and opportunities it presents.

Official opening

Mr Stephen Donnelly, TD, Minster for Health

Dr Mairéad O'Driscoll, Chief Executive, Health Research Board

Session 1: The promise of personalised medicine

Personalised medicine promises to transform the way healthcare is delivered. This session set the scene with an overview of what personalised medicine is and the opportunities it offers.

The public voice: What does personalised medicine mean to you?

Chair: Prof. Bernie Hannigan, Chairperson, HRB Board

Prof. Dame Anna Dominiczak, University of Glasgow - The Living Laboratory for Precision Medicine

Ejner Moltzen, ICPerMed - European Perspectives of Personalised Medicine: Challenges and Opportunities

Session 2: Personalised medicine in action

This session presented case studies showcasing the potential of personalised medicine across a range of applications.

The public voice: Would you consider personalised medicine?

Chair: Prof. Aedín Culhane, University of Limerick School of Medicine

Prof. Norman Delanty, Beaumont Hospital/Royal College of Surgeons Ireland - Epilepsy, Genomics and Personalised Medicine

Prof. Maeve Lowery, Trinity College Dublin/St James's Hospital - Precision cancer medicine: from concept to clinical practice

Dr Shane McKee, Department of Medical Genetics, Belfast Health and Social Care Trust - Creating a data infrastructure for precision clinical genomics

Q&A session

Session 3: Value assessment, cost and equity in personalised medicine

How should we define value when it comes to implementing personalised medicine? This session broadened out the debate to examine some of the challenges in areas such as cost and equity.

The public voice: Challenges in personalised medicine

Chair: Prof. Charles Normand, Trinity College Dublin

Prof. Katherine Payne, University of Manchester - Quantifying the value of personalised medicine

Prof. Michael Barry, National Centre of Pharmacoeconomics - The cost-effectiveness of personalised medicine 

Q&A session

Session 4: Perspectives on the path forward for personalised medicine

The final session brought together aspects from across the day's discussions to look ahead to the future - asking how stakeholders across health and research can work together to make the promise of personalised medicine a reality in Ireland. 

The public voice: What are your hopes for personalised medicine?

Chair: Muiris O'Connor, Department of Health

Contributions from a range of stakeholder perspectives, including:

Patient perspective: Orla Tinsley, patient advocate - Communication, Chaos and Catharsis: An Advocate's Perspective

Ethico-legal perspective: Dr Ciara Staunton, Eurac Research - Some ethical and legal reflections in pesonalised medicine

Research funding and policy perspective: Dr Teresa Maguire, Health Research Board - Personalised Medicine in Ireland- the research agenda

Industry perspective: Deirdre Poretti, Roche - Planning for the future: Personalised Healthcare a new framework for improving Health outcomes worldwide

Health system perspective: Dr Colm Henry, Health Service Executive - COVID 19 – The Aftermath

The way forward - discussion panel

Moderator: Claire Byrne

Contributors:

- Prof. Dame Anna Dominiczak, University of Glasgow

- Mr Ejner Moltzen, ICPerMed

- Dr Colm Henry, HSE

- Orla Tinsley, patient advocate

- Dr Teresa Maguire, HRB