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Accessing information

Requests for statistical information from the NIDD for research purposes are always welcome. There are certain procedures (pdf) in place with regard to the approval to release information and advance notice of projects is required. A Request for Information Form (pdf) must be completed for each request. Requesters should note that names/addresses of individuals registered on the NIDD are not held by the HRB and will never be released to researchers or organisations without the consent of the registered individual. Data requested from the NIDD will be supplied provided that complying with the request meets the criteria set down by the National Intellectual Disability Database Committee and does not conflict with obligations of confidentiality under the Data Protection Act 1988 and the Data Protection (Amendment) Act 2003.

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