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Bringing research to life - short films about ageing with an intellectual disability

6 December 2016

Films by people with intellectual disabilities (ID) for people with intellectual disabilities illuminate research findings on the complex and unique health and social challenges facing Ireland’s population who are ageing with an intellectual disability through the lens of those who directly experience them.

Dr Graham Love, Chief Executive at the Health Research Board, who funded the award to make the videos said,  

'The HRB is driving the development of Public and Patient Involvement, or PPI, in research in Ireland. Involving the public and patients in research makes it more relevant to the people it is going to benefit and makes it more likely it will get into policy and practice. IDS-TILDA* is not only a shining example of PPI in research, but to my knowledge, is a world first in terms of engaging people with intellectual disability in research rather than doing research about them'. 

This project was funded under the Health Research Board’s Knowledge Exchange and Dissemination Scheme.

The videos are available to view at:

More information is also available from the press release on the TCD website

*The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) is a longitudinal study about growing older with an intellectual disability. It is made possible by data collected by the HRB's National Intellectual Disability Database (NIDD).

The provision of this quality data from the HRB's NIDD has offered Ireland a unique opportunity to include an intellectual disability supplement to a national longitudinal study on ageing. It is the first time this has been done anywhere in the world. It enables robust appraisals of important similarities and differences in the lives of people with ID as they age. It helps our understanding of the health and social consequences of ageing among people with ID, and, most importantly, it provides key data to underpin and guide policy in this area.

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